As much as I dread Savannah's treatment, I wish we could go and get her started today! The tumor on her neck is growing rapidly and is making her whole chest hurt. It even hurts her to move. She tries to be brave but I can tell she 's not feeling good. Please continue those prayers. Thanks!
Thursday, April 30, 2009
Thursday, April 23, 2009
NIH called
We heard from NIH today. They have scheduled us to come out on May 4th. Savannah will start chemo on the 7th. They want her there a few days early to do some blood work. She will be on chemo for 7 days. It will totally wipe out her immune system. After that they will infuse the till cells into her system and then start the Interleukin 2. Since she will have no immune system the threat of infection is a very real one. I'm getting a head start and asking for prayer that God will just keep her cradled in His hands and keep her free of anything that could cause infections. I also ask for prayer with all the side effects of the chemo and IL2
Danny and I would also appreciate prayers for us to have the emotional and physical strength to handle all that lies ahead as we take care of her.
I feel a little strange promoting the benefit that some WONDERFUL FRIENDS are having for Savannah... but.... so many are asking for specifics that I thought I would address some of the questions.....
What - Dinner (mexican/fajitas), music show & auction
When - Saturday, May 2nd @ 6pm
Where - Greenland Community Center
From what I've heard, they could still use some volunteers to help serve, take $ for the auction and clean-up afterward.
Anyone interested can contact Diane Cramer @
Danny and I would also appreciate prayers for us to have the emotional and physical strength to handle all that lies ahead as we take care of her.
I feel a little strange promoting the benefit that some WONDERFUL FRIENDS are having for Savannah... but.... so many are asking for specifics that I thought I would address some of the questions.....
What - Dinner (mexican/fajitas), music show & auction
When - Saturday, May 2nd @ 6pm
Where - Greenland Community Center
From what I've heard, they could still use some volunteers to help serve, take $ for the auction and clean-up afterward.
Anyone interested can contact Diane Cramer @
Friday, April 17, 2009
Friday
We just got back from Savannah's appointment today. The scan showed that the bump on her neck....above her collar bone is a new tumor. It grew rapidly but some of the other spots did not SO... there is always something to be thankful for! Now, we will just wait for NIH to contact us with our schedule.
Thank you for keeping up the prayers. Also, Thank you to all of you who are volunteering all of your time, energy and resources to benefit our family. We don't deserve it but we definitely appreciate it. We are so blessed. :)
Thank you for keeping up the prayers. Also, Thank you to all of you who are volunteering all of your time, energy and resources to benefit our family. We don't deserve it but we definitely appreciate it. We are so blessed. :)
Well, I've decided that I had better watch what I ask you guys to pray for because the minute I put a prayer request on this blog......it gets answered before I get off the computer. I was re-reading the last 2 posts and I realized I left a part out. I said that God had just worked the IL2/ insurance thing out but I didn't tell how.
They were not going to give her the treatment because it is so expensive and some insurances won't pay. As soon as I logged off the computer, our connections at NIH had emailed and said If we decided to go that route, they would see to it that she got the drug. Then, that afternoon we had an appointment with our doctor here and He said that he had talked to WRMC and if she wanted the IL2 treatment...SHE WOULD HAVE IT...PERIOD! As I said before, now she doesn't need it because the till cells are growing so fast! :)
Savannah had another scan Wednesday and we go today to see what they say about whether it's fast or slow growing.
I have a sad heart this morning. Danny had a young friend and co-worker die in a car wreck. His name was Paul Lindey and he was 23 yrs. old. Danny said he was a really great guy. I feel for his family who lives in Mena where they are still recovering from the tornado that hit there the other day.
Coach Calhoun, one of Shelby's former teachers died of a heart attack. He was the sweetest man ever. The kids loved him so much....we will miss him dearly.
And.....though not last on my list by any means......Aaron Tomlinson, the son of some good friends of ours, has left this morning to serve our country in Iraq.
My prayer request today is that God will just comfort these families in their loss. I also pray that He will go with Aaron, keep him safe and return him to his family soon AND give his mama & daddy PEACE about it!
They were not going to give her the treatment because it is so expensive and some insurances won't pay. As soon as I logged off the computer, our connections at NIH had emailed and said If we decided to go that route, they would see to it that she got the drug. Then, that afternoon we had an appointment with our doctor here and He said that he had talked to WRMC and if she wanted the IL2 treatment...SHE WOULD HAVE IT...PERIOD! As I said before, now she doesn't need it because the till cells are growing so fast! :)
Savannah had another scan Wednesday and we go today to see what they say about whether it's fast or slow growing.
I have a sad heart this morning. Danny had a young friend and co-worker die in a car wreck. His name was Paul Lindey and he was 23 yrs. old. Danny said he was a really great guy. I feel for his family who lives in Mena where they are still recovering from the tornado that hit there the other day.
Coach Calhoun, one of Shelby's former teachers died of a heart attack. He was the sweetest man ever. The kids loved him so much....we will miss him dearly.
And.....though not last on my list by any means......Aaron Tomlinson, the son of some good friends of ours, has left this morning to serve our country in Iraq.
My prayer request today is that God will just comfort these families in their loss. I also pray that He will go with Aaron, keep him safe and return him to his family soon AND give his mama & daddy PEACE about it!
Monday, April 13, 2009
WOW!
In the last blog I posted earlier today, I asked you guys to pray that Savannah's till cells would grow. They told us last Friday that it would be at least 2 more weeks before they would know. About 2pm today NIH called and said the till cells were growing like crazy!!!!!!! Next week they will have our schedule ready and be able to start treatment earlier...in May instead of June.
THANK YOU GOD!!!!!!!!!!!
He just keeps on blessing!
THANK YOU GOD!!!!!!!!!!!
He just keeps on blessing!
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