We just got back from Savannah's appointment today. The scan showed that the bump on her neck....above her collar bone is a new tumor. It grew rapidly but some of the other spots did not SO... there is always something to be thankful for! Now, we will just wait for NIH to contact us with our schedule.
Thank you for keeping up the prayers. Also, Thank you to all of you who are volunteering all of your time, energy and resources to benefit our family. We don't deserve it but we definitely appreciate it. We are so blessed. :)